Cleft Community Advisory Council

The CCAC is an important part of the Smile Train community. Informed by their own experiences with clefts, our members help advance the organization’s communications strategies, and through an array of engagement activities, help strengthen the U.S. cleft community.

Cleft community advisory council member holding her child

2020 CCAC Members

Chelsea Baratto

Ashley Barbour

Drew Epling

Christine Errico

Jessi Fasse

Alyson Ferguson

Susan Hollis

Janice Lexton

Michael Pickar

Clare Pickar

Amy Wilde

Jessi Williams

Growing Up With a Cleft

Ashley Barbour, Christine Errico, and Amy Wilde open up about their personal experiences growing up with clefts, share what they wish more people understood about clefts, and offer suggestions on how parents can best support their children through their cleft care journeys.

Having a Child With a Cleft

Chelsea Baratto, Jessi Fasse, and Susan Hollis share a candid conversation about their experiences as mothers to children with clefts. They discuss how they navigate challenges ranging from school to the healthcare system and share their advice to new parents of children with clefts.

Logistical Challenges in Cleft Care

Alyson Ferguson, Christine Errico, and Jessi Williams discuss their own connections to clefts and some of the greatest logistical hurdles they’ve faced in accessing high-quality care. They also share advice for others beginning their cleft care journeys.

Patient and Family Resources

Smile Train aims to support families worldwide by creating, connecting, and sharing resources about comprehensive cleft care. Explore our site to find expert advice and resources.!

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