Cleft Community Advisory Council

Cleft community advisory council member holding her child

The CCAC is an important part of Smile Train's community. Informed by their own experiences with clefts, our members help advance the organization’s communications strategies, and through an array of engagement activities, help strengthen the US cleft community.

2024 CCAC Members

Nora Abu Hassan

Corinne Altrichter

Victoria Artis

Sonja Ashcraft

Greg Backstrom

Chelsea Baratto

Ashley Barbour

Eric Bates

Kavitha Bhaskar

C. Eric Bodo

Teresa Bridges

Summer Bryan

Monica Bush

Elainea Byrd

Amanda Canary

Luci Capo Rome

Adam Carr

Dakotah Colechia

Annie Craig

Drew Davis

Sara Davis- Calyore

Rachel Diamond

Melissa Dillon

Anna Ellis

Marissa Erickson

Christine Errico

Morgan Estes

Marly Eugenio

Jessi Fasse

Alyson Ferguson

Allison Fors

Elsie Garcia

Marie Gettel-Gilmartin

Lindsay Grenert

Tracy Guy

Eileen Healey

Serena Heid

Steph Heintz


Tara Hoggan

Amanda Jackson

Brooke Jennings

Andi Kezh

Gina Kocher

Christina Larrow

Alexis Lee

Matthew Lenius

Ellie Mador

Crissy Maier

Alyssa Marsh

Dennis J Martin

Victoria Matey

Hannah McNeal

Caitlin Mesiano

Lauren Michalsen

Nicole Minick

Linda Morris

Elizabeth Mull

Julia North

Natasha Orlando Figueiredo

Jacquelynn Orr

Beth Pack

Jamie Paratore

Diane Perez

Jessica Putterman

Duncan Quinn

Susana Rico

Samuel Rosen

Timothy Ross

Jim Rowe

Suzanne Santomieri

Elizabeth Shipp

Robin Shouse

Romona Smith

Vickie Stolle

Miranda Strange

Matt Suellentrop

Walid Tamtam

Chelsey Taylor

David Tenenbaum

Caroline Turner

Elle Walters

Toni-Elizabeth Wilkerson

Jessi Williams

Tyler Williams

Rachel Williams

Growing Up With a Cleft

Ashley Barbour, Christine Errico, and Amy Wilde open up about their personal experiences growing up with clefts, share what they wish more people understood about clefts, and offer suggestions on how parents can best support their children through their cleft care journeys.

Having a Child With a Cleft

Chelsea Baratto, Jessi Fasse, and Susan Hollis share a candid conversation about their experiences as mothers to children with clefts. They discuss how they navigate challenges ranging from school to the healthcare system and share their advice to new parents of children with clefts.

Logistical Challenges in Cleft Care

Alyson Ferguson, Christine Errico, and Jessi Williams discuss their own connections to clefts and some of the greatest logistical hurdles they’ve faced in accessing high-quality care. They also share advice for others beginning their cleft care journeys.

Patient and Family Resources

Smile Train aims to support families worldwide by creating, connecting, and sharing resources about comprehensive cleft care. Explore our site to find expert advice and resources!

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