Cleft Community Advisory Council

Cleft community advisory council member holding her child

The CCAC is an important part of the Smile Train community. Informed by their own experiences with clefts, our members help advance the organization’s communications strategies, and through an array of engagement activities, help strengthen the U.S. cleft community.

2021 CCAC Members

Iva Ballou

Chelsea Baratto

Ashley Barbour

Carl Eric Bodo

Pamela Bolado

Lauren Braier

Teresa Bridges

Sandra Bryant

Monica Bush

Jessica Canallatos

Elana Colangelo

Jasmine Czarnecki

Angela Diable

Christine Errico

Jessi Fasse

Alyson Ferguson

Caitlin Flynn

Katherine Fox

Lindsay Grenert

Mahwish Hamayun

Debbie Hanson

Samantha Henrici-Marvin

Susan Hollis

Courtney Hundley

Sara Inman

Maura Kolkmeyer

Christina Larrow

Christine Maier

Michaella Michael

Rachel Miller

Cheryce Morrison

Heather Murray

Jim Nowakowski

Emily Oliver

Luci Rome

Suzanne Santomieri

Molly Schaefer

Anastasia Shender

Justin Stewart

Marian Tran

Erin Wallace

Callie Ward

Jeannette Wesseldyke

Jessi Williams

Rebecca Zanolini

Growing Up With a Cleft

Ashley Barbour, Christine Errico, and Amy Wilde open up about their personal experiences growing up with clefts, share what they wish more people understood about clefts, and offer suggestions on how parents can best support their children through their cleft care journeys.

Having a Child With a Cleft

Chelsea Baratto, Jessi Fasse, and Susan Hollis share a candid conversation about their experiences as mothers to children with clefts. They discuss how they navigate challenges ranging from school to the healthcare system and share their advice to new parents of children with clefts.

Logistical Challenges in Cleft Care

Alyson Ferguson, Christine Errico, and Jessi Williams discuss their own connections to clefts and some of the greatest logistical hurdles they’ve faced in accessing high-quality care. They also share advice for others beginning their cleft care journeys.

Patient and Family Resources

Smile Train aims to support families worldwide by creating, connecting, and sharing resources about comprehensive cleft care. Explore our site to find expert advice and resources.!

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