Cleft Community Advisory Council

Cleft community advisory council member holding her child

The CCAC is an important part of the Smile Train community. Informed by their own experiences with clefts, our members help advance the organization’s communications strategies, and through an array of engagement activities, help strengthen the U.S. cleft community.

2022 CCAC Members

Caroline Appel

Sonja Ashcraft

Chelsea Baratto

Ashley Barbour

Chris Barnhart

Abigail Barreto

Eric Bates

Kavitha Bhaskar

Tara Blanco

Carl Eric Bodo

Teresa Bridges

Whitney Brissey

Christopher Burke

Monica Bush

Amanda Canary

Luci Capo Rome

Kathryn Capps

Jennifer Cook

Kayla Cortz

Jasmine Czarnecki

LaDarius Davis

Angela Diable

Christine Errico

Sylvia Esparza de Vega

Sophie Exarchakis

Jessi Fasse

Alyson Ferguson

Allison Fors

Lindsay Grenert

Debbie Hanson

Samantha Henrici-Marvin

Sally Hiraldo

Susan Hollis

Rebecca Houghton

Courtney Hundley

Brandi Ibarra

Alex Isenberg

McKayla Kendall

Christina Larrow

Christine Maier

Nathalie Martinez

Victoria Matey

Gabrielle Mathis

Caitlin Mesiano

Andrea Mills

Jennifer Miner

Linda Morris

Alexandria Ramos

Timothy Ross

Jim Rowe

Suzanne Santomieri

Janeen Shemenski

Anastasia Shender

Melody Silva

Victoria Stolle

Allison Trenerry

Victoria Ulhorn

Jeannette Wesseldyke

Toni-Elizabeth Wilkerson

Jessi Williams

Rebecca Zanolini

Growing Up With a Cleft

Ashley Barbour, Christine Errico, and Amy Wilde open up about their personal experiences growing up with clefts, share what they wish more people understood about clefts, and offer suggestions on how parents can best support their children through their cleft care journeys.

Having a Child With a Cleft

Chelsea Baratto, Jessi Fasse, and Susan Hollis share a candid conversation about their experiences as mothers to children with clefts. They discuss how they navigate challenges ranging from school to the healthcare system and share their advice to new parents of children with clefts.

Logistical Challenges in Cleft Care

Alyson Ferguson, Christine Errico, and Jessi Williams discuss their own connections to clefts and some of the greatest logistical hurdles they’ve faced in accessing high-quality care. They also share advice for others beginning their cleft care journeys.

Patient and Family Resources

Smile Train aims to support families worldwide by creating, connecting, and sharing resources about comprehensive cleft care. Explore our site to find expert advice and resources.!

Learn More