Cleft Community Advisory Council
The CCAC is an important part of Smile Train's community. Informed by their own experiences with clefts, our members help advance the organization’s communications strategies, and through an array of engagement activities, help strengthen the US cleft community.
2024 CCAC Members
Nora Abu Hassan
Corinne Altrichter
Victoria Artis
Sonja Ashcraft
Greg Backstrom
Chelsea Baratto
Ashley Barbour
Eric Bates
Kavitha Bhaskar
C. Eric Bodo
Teresa Bridges
Summer Bryan
Monica Bush
Elainea Byrd
Amanda Canary
Luci Capo Rome
Adam Carr
Dakotah Colechia
Annie Craig
Drew Davis
Sara Davis- Calyore
Rachel Diamond
Melissa Dillon
Anna Ellis
Marissa Erickson
Christine Errico
Morgan Estes
Marly Eugenio
Jessi Fasse
Alyson Ferguson
Allison Fors
Elsie Garcia
Marie Gettel-Gilmartin
Lindsay Grenert
Tracy Guy
Eileen Healey
Serena Heid
Steph Heintz
SALLY HIRALDO
Tara Hoggan
Amanda Jackson
Brooke Jennings
Andi Kezh
Gina Kocher
Christina Larrow
Alexis Lee
Matthew Lenius
Ellie Mador
Crissy Maier
Alyssa Marsh
Dennis J Martin
Victoria Matey
Hannah McNeal
Caitlin Mesiano
Lauren Michalsen
Nicole Minick
Linda Morris
Elizabeth Mull
Julia North
Natasha Orlando Figueiredo
Jacquelynn Orr
Beth Pack
Jamie Paratore
Diane Perez
Jessica Putterman
Duncan Quinn
Susana Rico
Samuel Rosen
Timothy Ross
Jim Rowe
Suzanne Santomieri
Elizabeth Shipp
Robin Shouse
Romona Smith
Vickie Stolle
Miranda Strange
Matt Suellentrop
Walid Tamtam
Chelsey Taylor
David Tenenbaum
Caroline Turner
Elle Walters
Toni-Elizabeth Wilkerson
Jessi Williams
Tyler Williams
Rachel Williams
Growing Up With a Cleft
Ashley Barbour, Christine Errico, and Amy Wilde open up about their personal experiences growing up with clefts, share what they wish more people understood about clefts, and offer suggestions on how parents can best support their children through their cleft care journeys.
Having a Child With a Cleft
Chelsea Baratto, Jessi Fasse, and Susan Hollis share a candid conversation about their experiences as mothers to children with clefts. They discuss how they navigate challenges ranging from school to the healthcare system and share their advice to new parents of children with clefts.
Logistical Challenges in Cleft Care
Alyson Ferguson, Christine Errico, and Jessi Williams discuss their own connections to clefts and some of the greatest logistical hurdles they’ve faced in accessing high-quality care. They also share advice for others beginning their cleft care journeys.
Patient and Family Resources
Smile Train aims to support families worldwide by creating, connecting, and sharing resources about comprehensive cleft care. Explore our site to find expert advice and resources!