Cleft Community Advisory Council

Cleft community advisory council member holding her child

The CCAC is an important part of Smile Train's community. Informed by their own experiences with clefts, our members help advance the organization’s communications strategies, and through an array of engagement activities, help strengthen the US cleft community.

2025 CCAC Members

Carrie Alajoki

Corinne Altrichter

Chelsea Baratto

Eric Bates

Casey Berryman

Carl Eric Bodo

Kelly Brantley

Teresa Bridges

Monica Bush

Amanda Canary

Luci Capo Rome

Adam Carr

Dakotah Colechia

Jennifer Cook

Kimberly dela Concepcion

Michelle Diaz

Melissa Dillon

Karine Dombroff

Anna Ellis

Marissa Erickson

Christine Errico

Morgan Estes

Marly Eugenio

Jessi Fasse

Alyson Ferguson

Allison Fors

Julee Gorman

Lindsay Grenert

Tracy Guy

Serena Heid

Stephanie Heintz

Sally Hiraldo

Tara Hoggan

Johnathan Hornig

Mary Johnson

Jessica Jones

Gina Kocher

Christina Larrow

Alexis Lee

Matthew Lenius

Christine Maier

Mary Jo Marino

Annie Marlenga

Victoria Matey

Hannah McNeal

Caitlin Mesiano

Nicole Minick

Linda Morris

Jimena Morua

Margo Mriscin

Elizabeth Mull

Julia North

Diane Perez

Duncan Quinn

Shiann Ragbir-Gopaul

Jane Raymond

Rachel Rogers

Sam Rosen

James Rowe

Kimberly Ryan

Suzanne Santomieri

Oliver Segal-Gould

Norman Smith

Vickie Stolle

Miranda Strange

Ellie Strickland

Ladell Stutts

Matt Suellentrop

Chelsey Taylor

Tiffiny Tyler

Stacey Verhoff

Elle Walters

Toni-Elizabeth Wilkerson

Jessi Williams

Growing Up With a Cleft

Ashley Barbour, Christine Errico, and Amy Wilde open up about their personal experiences growing up with clefts, share what they wish more people understood about clefts, and offer suggestions on how parents can best support their children through their cleft care journeys.

Having a Child With a Cleft

Chelsea Baratto, Jessi Fasse, and Susan Hollis share a candid conversation about their experiences as mothers to children with clefts. They discuss how they navigate challenges ranging from school to the healthcare system and share their advice to new parents of children with clefts.

Logistical Challenges in Cleft Care

Alyson Ferguson, Christine Errico, and Jessi Williams discuss their own connections to clefts and some of the greatest logistical hurdles they’ve faced in accessing high-quality care. They also share advice for others beginning their cleft care journeys.

Patient and Family Resources

Smile Train aims to support families worldwide by creating, connecting, and sharing resources about comprehensive cleft care. Explore our site to find expert advice and resources!